It always amazes me how women can turn something good into something so terrible soooo very quickly. I don't mind taking some flak for this one, it is what it is.
Remember that group I was talking about? Yeah, total disaster. My way, your way, this way, that way. My way is the best and your way is uneducated. Ugh!
I cant take it.
This is why CF continues to be such an isolating disease.
Between the computers and the Internet, between Facebook and Twitter, between here and there.....somewhere CF should be getting its ass kicked and the isolation SHOULD be minimal.....but its not because no one can simply say "Hey, I didn't know about that." or "We don't do things that way, what's up with that?" without being called uneducated and ignorant.
I love my bubble.
You guys know this.
I ventured outside my bubble and, once again, I was reminded exactly why I don't go there.
I am not the "i am woman, hear me roar" type. I don't side with the feminist movement, I get a lot of ugly looks because when things get petty and catty my favorite thing to do is shrug my shoulders and say "f*&king females"....
So I'm going back to my bubble. A place where my daughter's weight is always on target (even though I always want it higher), a place where she has never been hospitalized (Thank you God), a place where we work out the kinks in her care with determination (and yelling and tears) and out of love....and that is good enough.
My bubble is good enough.
Remember that group I was talking about? Yeah, total disaster. My way, your way, this way, that way. My way is the best and your way is uneducated. Ugh!
I cant take it.
This is why CF continues to be such an isolating disease.
Between the computers and the Internet, between Facebook and Twitter, between here and there.....somewhere CF should be getting its ass kicked and the isolation SHOULD be minimal.....but its not because no one can simply say "Hey, I didn't know about that." or "We don't do things that way, what's up with that?" without being called uneducated and ignorant.
I love my bubble.
You guys know this.
I ventured outside my bubble and, once again, I was reminded exactly why I don't go there.
I am not the "i am woman, hear me roar" type. I don't side with the feminist movement, I get a lot of ugly looks because when things get petty and catty my favorite thing to do is shrug my shoulders and say "f*&king females"....
So I'm going back to my bubble. A place where my daughter's weight is always on target (even though I always want it higher), a place where she has never been hospitalized (Thank you God), a place where we work out the kinks in her care with determination (and yelling and tears) and out of love....and that is good enough.
My bubble is good enough.
My biggest issue with the online CF community is the "my way is the only way" attitude. I simply can't stomach it. There are a lot of good resources out there, I've learned SO MUCH and made a lot of good friends, but venturing out of my own bubble has caused me some grief a time or two.
ReplyDeleteI hear ya! I can't stand the "This is the only way it can and should be done" pressure. Us adults with CF are scrutinized just like parents and it's a huge bummer. I say leave the group and retreat back to your bubble ;-)
ReplyDeleteWith all the different genetic combinations and varying levels of manifestations and severity, that really just doesn't make any sense to me at all...
ReplyDeleteThat being said... That's why I get along so much better with guys. And I'm normally the one making the inappropriate comments about women and the way they operate... :)
Here's one for ya... "If women ruled the world there would be no war, just a bunch of countries not talking to each other."