Tuesday, April 15, 2014

Chase

I was brought to my knees this morning. 

I never met Chase. I've never met his mother, but we have known of each other for years. We are Facebook friends but still strangers who share a common bond.....cystic fibrosis.

The news of Chase's passing hit hard. It hurt. I stepped out the front door of my house, called my stepmother, and hit my knees and bawled like I haven't in ages.

It's not fair.  It's not right.  Why?

Being the parent of a child with CF is much akin to skating on a frozen pond. It's beautiful, it's scary,  it's not as smooth as skating in a rink, but fun just the same. The only problem is that the ice is thin,  you never know when it will crack, you never know if or when you're going to fall through. You never know how it will end.

I remind myself of what Natalie's specialist told me on her first visit. "She will grow. She will live. She will need a college fund."

I hope and pray and dream that I get to have the privilege to spend every last dime I have putting her through college.

My love to the Curry family today, and always.