I'm not sure that I've ever really talked about this part of CF life.....the meat and potatoes of it all....where it comes from (genetically speaking), why it's here (in our lives), etc. etc. etc.
For various reasons, kicking and stumbling through a fat and calories packed breakfast-making effort, trying to wake up this morning, I thought to myself, "Man, it sucks to be Jewish." Now before anyone goes calling me antisemitic or racist or anything else absurd, let me explain.
I am Jewish, apparently. Not just any type of Jewish, Ashkenazi Jewish.....
Who? What? When? Where? How?
Yeah, I wondered the same things. My Grandparents on my mother's side were Italian and Native American/Irish.... on my Father's side its not quite as clear but there's a lot of Native American over there too.....My Mother's side is deeply rooted in the United States......deeply......the first that I can find of a foreigner is an English immigrant in the 1600's.
Anyway, I am rambling, back to my point.
I honestly wouldn't mind being Jewish......I agree with a great many parts of their culture. I love the fact that they get the Old Testament of the Bible and aren't bound to the "If you aren't Christian, there's something wrong with you" mentality that prevails throughout America (or at least here in the south). I mean who wouldn't want to be Jewish? After all, they are God's chosen people.....
The problem lies in the fact that I am not religiously Jewish, but genetically, I am. Natalie inherited the w1282x mutation from me. w1282x is an Ashkenazi Jewish/Israeli mutation. Okay, strike one, Cystic Fibrosis mutation from that part of the gene pool......Strike two, you ask??? Tay Sachs. Tay Sachs is another genetic disorder carried by the Ashkenazi Jewish genetic line. It is a devastating disease for which there is no cure, very little treatment, which leads to eventual paralysis and death.....at a very young age.....before the child's third birthday.....*sigh*. Strike 3? Does there have to be a strike three??? Isn't that enough??
There are enough problems to worry about in life......like the things that are sitting in your face here and now....Now I get to worry about things that may come, things that may go wrong, things that I am unaware of and unable to control, things that may or may not manifest, that may or may not be passed to my children.....
I feel broken. Genetically inferior. Sad.
I'm going to go find some chocolate.....maybe that will make me feel better.....at least for a little while.
For various reasons, kicking and stumbling through a fat and calories packed breakfast-making effort, trying to wake up this morning, I thought to myself, "Man, it sucks to be Jewish." Now before anyone goes calling me antisemitic or racist or anything else absurd, let me explain.
I am Jewish, apparently. Not just any type of Jewish, Ashkenazi Jewish.....
Who? What? When? Where? How?
Yeah, I wondered the same things. My Grandparents on my mother's side were Italian and Native American/Irish.... on my Father's side its not quite as clear but there's a lot of Native American over there too.....My Mother's side is deeply rooted in the United States......deeply......the first that I can find of a foreigner is an English immigrant in the 1600's.
Anyway, I am rambling, back to my point.
I honestly wouldn't mind being Jewish......I agree with a great many parts of their culture. I love the fact that they get the Old Testament of the Bible and aren't bound to the "If you aren't Christian, there's something wrong with you" mentality that prevails throughout America (or at least here in the south). I mean who wouldn't want to be Jewish? After all, they are God's chosen people.....
The problem lies in the fact that I am not religiously Jewish, but genetically, I am. Natalie inherited the w1282x mutation from me. w1282x is an Ashkenazi Jewish/Israeli mutation. Okay, strike one, Cystic Fibrosis mutation from that part of the gene pool......Strike two, you ask??? Tay Sachs. Tay Sachs is another genetic disorder carried by the Ashkenazi Jewish genetic line. It is a devastating disease for which there is no cure, very little treatment, which leads to eventual paralysis and death.....at a very young age.....before the child's third birthday.....*sigh*. Strike 3? Does there have to be a strike three??? Isn't that enough??
There are enough problems to worry about in life......like the things that are sitting in your face here and now....Now I get to worry about things that may come, things that may go wrong, things that I am unaware of and unable to control, things that may or may not manifest, that may or may not be passed to my children.....
I feel broken. Genetically inferior. Sad.
I'm going to go find some chocolate.....maybe that will make me feel better.....at least for a little while.
Juli,
ReplyDeleteJust stopped by to see how you're doing and was hoping all is much better, but it seems you have another item on your plate of concern. It must be very hard not to worry about these things. Someone once said they set aside an hour one day a week to ponder their worries and forget them the other 6 days and 23 hours. Doubt this helps but know you are being thought of.
The GA AU fan
Juli,
ReplyDeleteWishing you and your family good wishes and a very Happy Thanksgiving.
War Eagle!!